“Cure4CF Foundation is taking action to create a future free of the devastating effects of cystic fibrosis for people living with the disease and their families. We believe that ‘Now is the time to cure CF’ and that together, through an investment in medical research, this is a goal that can be achieved.” (Cure4CF)
Until a few weeks ago I had no idea what cystic fibrosis was or the devastating effects it has on so many of it’s sufferers. On the 30th of October I attended a high tea at the Intercontinental Adelaide, which was in aid of the Cure4CF Foundation, the event was organised by Emmah Evans (Daughter, Sister, Friend, Wife, Mother and CF sufferer). Emmah shared her story with us and I don’t think there was a dry eye in the room. My interpretation of Emmah’s story is that no matter what label she has, she lives her life with passion and a mission, she’s a fighter and an advocate, and one who will never give up on getting her word out there and making things happen, in order to save lives, including that of her own.
For those of you who haven’t heard of CF or don’t know what it is (like myself), here is some information about it; “CF primarily affects the lungs and digestive system, CF suffers have a defective gene and this is what causes the body to produce thick and sticky mucus which makes it harder for CF sufferers to breath as the mucus blocks the lungs – intensive daily treatment is required just to maintain good airways, when a cold occurs in someone with CF this can be life threatening. Because the mucus damages the pancreas system, it stops the natural enzyme’s system working, it is common for CF sufferers to require pancreatic enzymes to assist with the break down of foods to absorb them.” (Emmah Evans)
Emmah is 28 years old and those diagnosed with CF have an average life expectancy of 37 years. But with research trials on the horizon there is hope for a cure for CF, with the help of generous people and strong advocates like Emmah, it is possible to get closer to a cure! If you would like to help out in some way click here.